Actualités
Adrian R. Krainer has been awarded the 2025 Heinrich Wieland Prize for his pioneering RNA research that led to the ...
Columnist Jasmine Ramos describes how three disability advocates, Brooke Ellison, Judy Heumann, and Christopher Reeve, have ...
Columnist Ari Anderson's health crisis brought home the importance of communicating to his caregivers when something doesn't ...
Columnist Sherry Toh is taking up a new creative project, even if it demands patience: making videos about makeup, aimed at ...
Columnist Connie Chandler encourages patients and caregivers to share their positive stories with their doctors.
A new ASAH1 mutation linked to SMA with progressive myoclonic epilepsy was found in a young boy, offering insights for ...
A group of questionnaires called PROfuture can meaningfully measure a variety of symptoms of SMA that impact patients, a ...
Guest writer Robin Collins, who's approaching 70, has adjusted to losses and survivor's guilt while finding solace in ...
Guest writer Joanna Buoniconti says that new treatments have granted her many things she's grateful for, including the ...
Columnist Sherry Toh discovers that an app's guys can treat her like any other woman — which makes for a lot of potential bad ...
For columnist Connie Chandler, finding a community filled with love, admiration, and support has made all the difference in ...
A higher-dose regimen of nusinersen may provide further benefits to people with SMA relative to the approved regimen, its ...
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